Brittney and her kids

Yesterday my friend Brittney and her kids came over. We were in the kitchen and Ray her son asked if he could use my motorized wheelchair and I said sure, because I don't want him to be scared of wheelchairs. I want him to feel c0mfortable around them.

dressing room

We went shopping last weekend, and I decided to try on some jeans, we were at a huge outlet mall, and we stopped in at the Levi's/ Dockers store. It was very busy and we got into line to use a dressing room, as we got a little closer in line, my mom looked in the dressing area and did not see an accessible dressing room. She asked the attendant where the accessible changing room was, and he led us over to the other side, he opened the door and it was full of furniture, racks, and general junk. The kid said he was sorry, but it was full, and can't the wheelchair fit into a regular room. I said no that the doorway was to small, and I wouldn't be able to close the door anyway even if it could fit in and the kid left it at that. My mom went to the front and asked for the manager, and said we needed the accessible dressing room. When he opened the door and saw it, he immediately started cleaning it out, with the help of other employees. I hope the manager clued in the other employees that it violates the American with Disability Act not to have a dressing room that can fit a wheelchair.

celebrities

I was watching TV and it got me to thinking about celebrities I'd like to meet, and anyone that knows me would say Mariah Carey. Also Jennifer Garner and Ben Affleck because of Ben's involvement w/ AT, also after I heard about him I became more interested in him. I'm sure everybody can name a hand full of celebrities they would like to meet so I won't start naming them. Recently I've been having dreams of meeting all kinds of different musicians from Mariah Carey to Taylor Swift and Shaina Twain, and asking them about song writing.

Jen's Biochem class

My friend Jen told me "they taught AT in Biochem "I asked if she learned anything new? She said "Exact Mutation and Enzyme that causes it .It was neat to see it pop up in the lecture b/c in my Doctor, Patient, Society class we were having a lecture on genetic diseases and my professor asked if anyone knew of a genetic disease where the symptoms dont show up until after birth. I raised my hand and said Ataxia Telangiectasia.Then the next day in Biochemistry, the last powerpoint slide was on AT."

12 things to do before im 35

1.meet Mariah Carey
2.go to a real party w/o any parents.....again
3.get married
4.no matter what my parents and doctor say i want to have at least one kid
5.become a song writer
6.move to Tennessee
7.get a job at DolllyWood
8. be a guest on the Doctor Phil or Doctor Oz show
9.go sky diving
10.go to the summer Olympics
11.go back to Italy
12.go on a cruise w/ my mom (DONE)

mouth sensitivity

Recently I've having more sensitivity in my mouth, on my lips, & on my tongue, I don't know if it's just me or it's the A-T. For example the taste of toothpaste has gotten to strong for me, spicy foods have gotten to spicy, & when I bump my lip on a cup or with my hand I check to make sure my lip is not bleeding.