It's frustrating when I have to let people help me, and I know I can do it sometimes. For example feeding myself, transfering from chair to chair, buckling your seat belt, picking up my pills in the morning or holding a cup. Sometimes I have to say ok I need help and I don't like it.
Im a stuborn Italian so, I don't like asking for help.
Wednesday, January 25, 2012
Tuesday, January 24, 2012
cell phones
Tring to find a phone is so frustrating. The buttons aren't big enough, and flip phones are to hard for me to open and usually the flip phones have bigger buttons. So I'm trhng to find a bar phone (that's not a touch screen). And buy a rubber cover (skin). Cause I drop em alot. Mission impossible?
Thursday, January 12, 2012
my dailly meds
Since it's getting harder for me to type and my tremors are getting worse my mom did most of the typing.
Daily Multiple Vitamin
ALPHA LIPOIC ACID 200mg is an antioxident
NEURONTIN 800 mg 4 x a day. This is for tremors. It becomes less effective once you're on it for a while, so it was increased to 600 3x a day, and now it up to 400mg 3 x a day
PROPRANOLOL ER 120MG, once a day, this is also for tremors, it is normally used as a blood pressure pill or for anxiety and panic. My tremors were getting very bad, it was geting difficult to feed myself, but once I started taking this, I saw a good improvement.
VITAMIN D2 1.25 MG once a week. This is for my bone health, I have very severe osteoporsis
My T score was -4, 2 years ago, which is about the worst it can get, my Rheumatologist said it was like having bones of an 85 year old, and I was only 26. My T-score improved to 3.1 over the last 2 years
LO LOESTRIN FE 1-10, this is a birth control pill which I use because on my hormone tests, it showed I was post menopausal, it help to regulate my hormones to help with my bone production
FORTEO 20 MG injection. This treats osteoporsis. You can only be on it 2 years, I have about 8 months to go. My mom gives me an injection in my thigh every night. It hurts a little from the pressure of the fluid.ffe
PREVACID 30 mg. I have gastritis, so this helps prevent heartburn and nausea
PROZAC 40 MG wouldn't you be depressed?
AMBIEN 10 MG I was having trouble going to sleep, sometimes it would take an hour or two, so this helps me fall asleep fast and stay asleep.
PS- I've gotten a few emails telling me how I helped younger families w/ AT childern. Even my cousin said "I never knew how hard Court's life is." I'm tring to get on the Anderson show so I can help other families or help people undetand what AT is, so if you could help me I'd appreciate it.
Daily Multiple Vitamin
ALPHA LIPOIC ACID 200mg is an antioxident
NEURONTIN 800 mg 4 x a day. This is for tremors. It becomes less effective once you're on it for a while, so it was increased to 600 3x a day, and now it up to 400mg 3 x a day
PROPRANOLOL ER 120MG, once a day, this is also for tremors, it is normally used as a blood pressure pill or for anxiety and panic. My tremors were getting very bad, it was geting difficult to feed myself, but once I started taking this, I saw a good improvement.
VITAMIN D2 1.25 MG once a week. This is for my bone health, I have very severe osteoporsis
My T score was -4, 2 years ago, which is about the worst it can get, my Rheumatologist said it was like having bones of an 85 year old, and I was only 26. My T-score improved to 3.1 over the last 2 years
LO LOESTRIN FE 1-10, this is a birth control pill which I use because on my hormone tests, it showed I was post menopausal, it help to regulate my hormones to help with my bone production
FORTEO 20 MG injection. This treats osteoporsis. You can only be on it 2 years, I have about 8 months to go. My mom gives me an injection in my thigh every night. It hurts a little from the pressure of the fluid.ffe
PREVACID 30 mg. I have gastritis, so this helps prevent heartburn and nausea
PROZAC 40 MG wouldn't you be depressed?
AMBIEN 10 MG I was having trouble going to sleep, sometimes it would take an hour or two, so this helps me fall asleep fast and stay asleep.
PS- I've gotten a few emails telling me how I helped younger families w/ AT childern. Even my cousin said "I never knew how hard Court's life is." I'm tring to get on the Anderson show so I can help other families or help people undetand what AT is, so if you could help me I'd appreciate it.
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