Tuesday, June 21, 2011
bathroom lock in
The other day I was locked in the bathroom. I tried turning the dial like thing on knob to unlock it a few times but it was jammed. My dad tried using all differant screw drivers and he even tried his eye glass tools. Finally he got it loose enough I could unlock the door.
Tuesday, June 14, 2011
QnA 1
I just revived an email with a couple questions.
I was wondering if you hurt any? I often wonder this about my daughter. She seems to be able to take pain quite well. I just dont want her to be hurting and me not know it. She also stays she's hungry 24/7. I havent been able to get het to Johns Hopkins yet to ask them these questions.
This is Courtney's mom, Cheryl, it's difficult for her to type, so I'll handle your questions, feel free to ask me anything, if it's something she has experienced, we'll me more thean happy to share her experiences. When Coutney was younger, she never felt any kind of pain, I don't know how advanced your daughter's AT is, but Court was still walking short distances until she was about 11 or 12. She does have pain now, mostly from her back and neck, with the progressing muscle weakness, sitting in a wheelchair, can cause some wear & tear..Years ago when we went to JHopkins, she was about 9-10 they told us that her tremors required a lot of calories, she is 5 feet and 87 lbs. She can eat like a horse sometimes, but has not gained weight since she was about 10. She can be a slow eater because of muscle weakness, and the time it can take her to eat, That probably keeps her weight down too. Spicy food bothers her, her mouth seems to get more sensitive as she has gotten older. She doesn't even like if I put a little pepper on food. She was told not to drink with straws, be cause of the weakness of their muscles, this can cause aspiration. She uses cups with tops that she tilts her back back to drink, as that action can help prevent aspiration. Also to help prevent aspiration we use SimplyThick.
I was wondering if you hurt any? I often wonder this about my daughter. She seems to be able to take pain quite well. I just dont want her to be hurting and me not know it. She also stays she's hungry 24/7. I havent been able to get het to Johns Hopkins yet to ask them these questions.
This is Courtney's mom, Cheryl, it's difficult for her to type, so I'll handle your questions, feel free to ask me anything, if it's something she has experienced, we'll me more thean happy to share her experiences. When Coutney was younger, she never felt any kind of pain, I don't know how advanced your daughter's AT is, but Court was still walking short distances until she was about 11 or 12. She does have pain now, mostly from her back and neck, with the progressing muscle weakness, sitting in a wheelchair, can cause some wear & tear..Years ago when we went to JHopkins, she was about 9-10 they told us that her tremors required a lot of calories, she is 5 feet and 87 lbs. She can eat like a horse sometimes, but has not gained weight since she was about 10. She can be a slow eater because of muscle weakness, and the time it can take her to eat, That probably keeps her weight down too. Spicy food bothers her, her mouth seems to get more sensitive as she has gotten older. She doesn't even like if I put a little pepper on food. She was told not to drink with straws, be cause of the weakness of their muscles, this can cause aspiration. She uses cups with tops that she tilts her back back to drink, as that action can help prevent aspiration. Also to help prevent aspiration we use SimplyThick.
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