I've talked about being on Entocort for my autoimmune hepatitis and microscopic colitis already, but this is an update about the side effects I've had from it. I started to look a linebacker frpm the Chicago Bears. My face became very full and round, it's actually called Cushings syndrome, it's from high levels of cortisol. I also have EXTREME sweats where I feel like Nba player after the playoffs. My face began growing hair where it never did before, I always had a light mushtache, but it got very dark, I even started getting hair on my hands. I kept kept getting oral yeast infection every 4-6 weeks and then had to take Fluconozole to stop them. I started gaining weight which isn't a bad thing. For years I was weighing about 84 lbs, but I zoomed up tp 97. I have an increased appetite and am out eating my Dad at dinner. ( The caramel frappacinos sure are helping) My Doctor then cut the Entocort dosage in half and the side effects began to lessen My white blood level count became very high, so I was sent to a Hematologist to make sure there were no signs of leukemia, and all of those tests came back fine. My liver numbers are back to normal so my Doctor may cut back the dosage back again, I hope I can keep the weight on & that my colitis doesn't get bad again.
I had a follow up Endoscopy because on the first one they found a growth with moderate dysplasia which could be capable of turning to Cancer. This scope results were much better, that growth did not come back, but I did have a yeast infection at the bottom of my esophagus reaching almost all the way up to my throat, so more Fluconozole for me, at least the Doctor did not give me the swish and swallow which tastest like rotten bananas to me.
I'm having more trouble doing physical things. My hand strength is getting weaker,and my hands are starting to have a concave look to them, it's harder to grasp things, even harder to hold a cup. My back and neck are weaker and I get a lot of pain. My hand and legs are getting muscle cramps now, and it's getting harder to straighten my legs because of tightness in my tendons.
My Courtney spirit will never relinquish, you've got to keep on going day to day. When someone acts like I'm incapable of doing something, I usually end up surprising them (and sometimes myself too)
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Keep pressing towards your goals, you are a huge inspiration to me and a lot of people who see this disease and the struggles it brings daily. Praying for you. Angie Broad
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